COVID-19 and UK cohort and longitudinal studies
COVID Data Collection Overview
Many studies have initiated additional phases of data collection to examine the impact of COVID-19 and the lockdown on mental health and wellbeing. Browse the COVID data collection timeline below to find information about the mental health data collected by the cohort studies during the pandemic.
COVID-19 AND ESTABLISHED LONGITUDINAL & COHORT STUDIES
Use the “COVID” filter on the Search page to limit your search to studies collecting information about mental health and wellbeing during lockdown, or click from the list below:
- Avon Longitudinal Study of Parents & Children (ALSPAC) - Learn more
- Born in Bradford (BiB & BiBBS) - Learn more
- British Cohort Study (BCS70) - Learn more
- Cognitive Function & Ageing Studies (CFAS)
- English Longitudinal Study of Ageing (ELSA)
- Environmental Risk Longitudinal Twin Study (E-Risk)
- Generation Scotland
- Health and Wellbeing of UK Armed Forces Personnel: A Cohort Study
- Mental Health of Children & Young People Surveys
- Millennium Cohort Study (MCS) - Learn more
- National Child Development Study (NCDS) - Learn more
- National Survey of Health & Development (NSHD) - Learn more
- Next Steps - Learn more
- Resilience, Ethnicity & Adolescent Mental Health (REACH)
- Southall & Brent Revisited (SABRE) - Learn more
- Twins Early Development Study (TEDS)
- TwinsUK - Learn more
- UK Biobank
- Understanding Society (UKHLS) - Learn more
- Wirral Child Health & Development Study (WCHADS)
COVID-19 data collection is taking place across 2020, and further sweeps are planned for 2021. We will continue to update the Catalogue as further information is made available
NEW STUDIES & COLLABORATIVE INITIATIVES ON MENTAL HEALTH & COVID-19
A number of new studies have been initiated to explore the effects of the pandemic on mental health, along with coordination efforts to facilitate collaboration between these studies.
WELLCOME TRUST COVID-19 QUESTIONNAIRE
The Wellcome Longitudinal Population Study (LPS) COVID-19 Steering Group & Secretariat has developed the Wellcome Trust Covid-19 Questionnaire to maximise the benefits gained from pandemic data collection by existing cohorts at minimal added cost and maximal public benefit.
The questionnaire is freely available to all population health researchers wishing to address health, behaviour, social, environmental and economic questions in the context of the pandemic. Find out more on the questionnaire webpage. Search “Wellcome” in the COVID timeline to identify data collection points that have utilised the CRISIS Survey.
NIH CORONAVIRUS HEALTH IMPACT (CRISIS) SURVEY
The CRISIS Survey is designed to enable researchers and care providers to examine the extent and impact of life changes induced by the epidemic on the mental health and behaviour of individuals and families across diverse international settings. The survey is available for download and use on the CRISIS website. Search “crisis” in the COVID timeline to identify data collection points that have utlitsed the CRISIS Survey.
COVID-MINDS is a network of longitudinal studies on the global mental health impact of COVID-19 funded by the Wellcome Trust. COVID-MINDS aims to support data sharing, the harmonisation of mental health measures, and dissemination. The network have identified:
- New and established longitudinal studies examining mental health during COVID-19
- Studies based in the UK and across the world
COVID-19 & MENTAL HEALTH STUDIES REGISTER
The NIHR Mental Health Translational Research Collaboration (MH-TRC) have established the COVID-19 and Mental Health Studies Register with the aim of facilitating the development of high-quality collaborative mental health research in the context of the pandemic. The register collates information about:
- Any study based in the UK that either addresses mental health aspects of the COVID-19 pandemic, or has the potential to address this field (for example, a COVID-19 respiratory study which is open to adding mental health outcome measures)
- International studies which have UK partners
UK LONGITUDINAL LINKAGE COLLABORATION (LLC)
The UK LONGITUDINAL LINKAGE COLLABORATION (UK LLC) is a new Trusted Research Environment (TRE) that hosts longitudinal study data, including mental health data, from more than 20 of the UK’s established longitudinal studies that is linked to studies’ participants NHS health records. It is a unique four-nations infrastructure for secure cross-cohort analysis where researchers can apply to access linked data across all partner studies through a single application.
The UK LLC TRE contains pre-pandemic longitudinal data and data collected from participants during the lockdowns and throughout the pandemic. ONS Approved Researchers working on COVID-19 research may apply to access this data, which is currently free of charge.